- Bruera E, Kuehn N, Miller MJ, Selmser P, Macmillan K. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care. 1991 Summer;7(2):6-9
- Pautex S, Vayne-Bossert P, Bernard M, Beauverd M, Cantin B, Mazzocato C, Thollet C, Bollondi-Pauly C, Ducloux D, Herrmann F, Escher M. Validation of the French Version of the Edmonton Symptom Assessment System. J Pain Symptom Manage. 2017 54:721-726
Échelle d’évaluation des symptômes
Processus décisionnel
- Standards framework for shared-decision-making support tools, including patient decision aids. Nice guidelines2021
- Kuosmanen L, Hupli M, Ahtiluoto S, Haavisto E. Patient participation in shared decision-making in palliative care - an integrative review. J Clin Nurs. 2021;30:3415- 3428
- Grote T, Berens P. On the ethics of algorithmic decision-making in healthcare. J Med Ethics. 2020;46:205-211
Douleur
- Antalgie dans les services médicaux et chirurgicaux adultes
- CAPP-Info n°59
- Diawara, F., Stanco, L., Rahm, N., D. (2023), Antalgie contrôlée par le patient dans les situations palliatives. Concepts et aspects pratiques, Rev Med Suisse, 9, no. 855, 2381–2384. https://doi.org/10.53738/REVMED.2023.19.855.2381
- Nijland L, Schmidt P, Frosch M, et al. Subcutaneous or intravenous opioid administration by patient-controlled analgesia in cancer pain: a systematic literature review. Support Care Cancer. 2019 Jan;27(1):33-42
- Lin R, Lin S, Feng S, et al.. Comparing Patient-Controlled Analgesia Versus NonPCA Hydromorphone Titration for Severe Cancer Pain: A Randomized Phase III Trial. J Natl Compr Canc Netw. 2021.;19:1148-55
Dyspnée
- Simon ST, Higginson IJ, Booth S, Harding R, Weingärtner V, Bausewein C. Benzodiazepines for the relief of breathlessness in advanced malignant and nonmalignant diseases in adults. Cochrane Database Syst Rev. 2016;10:CD007354.
- Abdallah SJ, Wilkinson-Maitland C, Saad N, Li PZ, Smith BM, Bourbeau J, Jensen D. Effect of morphine on breathlessness and exercise endurance in advanced COPD: a randomised crossover trial. Eur Respir J. 2017;50: 1701235
- Barnes H, McDonald J, Smallwood N, Manser R. Opioids for the palliation of refractory breathlessness in adults with advanced disease and terminal illness. Cochrane Database of Systematic Reviews 2016; 31;3:CD011008
- Johnson MJ, Currow DC Opioids for breathlessness: a narrative review BMJ Supportive & Palliative Care 2020;10:287-295
Râle du mourant
- Wee B, Hillier R. Interventions for noisy breathing in patients near to death. Cochrane Database Syst Rev. 2008;CD005177
- Campbell ML. Death rattle is not associated with patient respiratory distress: is pharmacologic treatment indicated? J Palliat Med 2013; 16:1255-9
- Lokker ME. Prevalence, impact, and treatment of death rattle: a systematic review. J Pain Symptom Manage. 2014;47:105-22
- Mercadante S, Marinangeli F, Masedu F, et al. Hyoscine Butylbromide for the Management of Death Rattle: Sooner Rather Than Later. J Pain Symptom Manage. 2018;56:902-907
- Van Esch HJ, van Zuylen L and al., Effect of Prophylactic Subcutaneous Scopolamine Butylbromide on Death Rattle in Patients at the End of Life: The SILENCE Randomized Clinical Trial. JAMA. 2021;32:1268-1276
- Taburee W, Dhippayom T, Nagaviroj K, Dilokthornsakul P. Effects of Anticholinergics on Death Rattle: A Systematic Review and Network Meta-Analysis, Palliat Med. 202326:431-440
Asthénie
- Mücke M; Mochamat, Cuhls H, and al. Pharmacological treatments for fatigue associated with palliative care. Cochrane. Database Syst Rev. 2015;5:CD006788
- Toohey K, Chapman M, Rushby A-M, Urban K, Ingham G, Singh B. The effects of physical exercise in the palliative care phase for people with advanced cancer: a systematic review with meta-analysis. Journal of Cancer Survivorship. 2023; 17:399-415
Cachexie-Nutrition artficielle
- Pautex S. Genton G. Indications à la nutrition artificielle chez les patients en soins palliatifs Forum Med Suisse. 2019;19:800-802
- Arends J, Bachmann P, Baracos V, and al. ESPEN guidelines on nutrition in cancer patients. Clin Nutr. 2017 Feb;36(1):11-48
- Druml C, Ballmer PE, Druml W, Oehmichen F and al C. ESPEN guideline on ethical aspects of artificial nutrition and hydration. Clin Nutr. 2016;35:545-56
- Cotogni P, Stragliotto S, Ossola M, Collo A, Riso S, On Behalf Of The Intersociety Italian Working Group For Nutritional Support In Cancer. The Role of Nutritional Support for Cancer Patients in Palliative Care. Nutrients. 2021.22;13:306
Symptômes digestifs
- Harder S, Herrstedt J, Isaksen J, et al. The nature of nausea: prevalence, etiology, and treatment in patients with advanced cancer not receiving antineoplastic treatment. Support Care Cancer. 2019;27:3071-3080
- P. Vayne-Bossert & al, Nausées en soins palliatifs revue de littérature, La gazette médicale 2018
- Sutherland A, Naessens K, Plugge E, Ware L, Head K, Burton MJ, Wee B. Olanzapine for the prevention and treatment of cancer-related nausea and vomiting in adults. Cochrane Database Syst Rev. 2018;9:CD012555
- Hisanaga T; Shinjo T; Morita T et al. Multicenter prospective study on efficacy and safety of octreotide for inoperable malignant bowel obstruction. J Clin Oncol, 2010:40: 739-745
- Bossi P, Antonuzzo A, Cherny NIet al. Diarrhoea in adult cancer patients: ESMO Clinical Practice Guidelines. Ann Oncol. 2018;29: iv126-iv142
Constipation
- Arm J, Coen M, Pautex S, Nendaz M. Gestion de la constipation induite par les opioïdes: les anciens et les modernes. Rev Med Suisse. 2024; 20:1919-1925
- ESMO Guidelines Committee. Diagnosis, assessment, and management of constipation in advanced cancer: ESMO Clinical Practice Guidelines. Ann Oncol. 2018:29:iv111-iv125
- Farmer AD, Drewes AM, Chiarioni G, et al. Pathophysiology and management of opioid-induced constipation: European expert consensus statement. United European Gastroenterol J. 2019 7:7-20
- Giorgio R, Zucco FM, Chiarioni G, Mercadante S, Corazziari ES, Caraceni A, Odetti P, Giusti R, Marinangeli F, Pinto C. Management of Opioid-Induced Constipation and Bowel Dysfunction: Expert Opinion of an Italian Multidisciplinary Panel. Adv Ther. 2021;7:3589-3621
Iléus
- Mercadante S. Intestinal dysfunction and obstruction. In: Palliative Medicine, Walsh D (Ed), Saunders Elsevier, Philadelphia 2009
- Ripamonti C, Mercadante S. Pathophysiology, and management of malignant bowel obstruction. In: Oxford Textbook of Palliative Medicine, 4th ed, Hanks GW, Cherny NI, Christakis NA, et al (Eds), Oxford University Press, Oxford 2010
- Kucukmetin A, Naik R, Galaal K, et al. Palliative surgery versus medical management for bowel obstruction in ovarian cancer. Cochrane Database Syst Rev 2010: CD007792
- Feuer DJ, Broadley KE. Corticosteroids for the resolution of malignant bowel obstruction in advanced gynaecological and gastrointestinal cancer. Cochrane Database Syst Rev 2000;CD001219
- Obita GP, Boland EG, Currow DC, et al. Somatostatin Analogues Compared with Placebo and Other Pharmacologic Agents in the Management of Symptoms of Inoperable Malignant Bowel Obstruction: A Systematic Review. J Pain Symptom Manage 2016; 52:901-919
Soins de bouche
- Fitzgerald R, et al. Oral Health in End-of-Life Patients: A Rapid Review. Spec Care Dentist. 2018;38(5):291–8
- Eilers J, et al. Testing, and Application of the Oral Assessment Guide. Oncol Nurs Forum. 1988;15:325-30
- Magnani C, et al. Oral Hygiene Care in Patients with Advanced Disease: An Essential Measure to Improve Oral Cavity Conditions and Symptom Management. Am J Hosp Palliat Care. 2019;36:815–9
- Vayne-Bossert P, et al. Effect of Topical Morphine (Mouthwash) on Oral Pain Due to Chemotherapy- and/or Radiotherapy-Induced Mucositis: A Randomized DoubleBlinded Study. J Palliat Med. 2010;13:125–8
Delirium
- Bush SH, Kanji S, Pereira JL, Davis DHJ, Currow DC, Meagher D, Rabheru K, Wright D, Bruera E, Hartwick M, Gagnon PR, Gagnon B, Breitbart W, Regnier L, Lawlor PG. Treating an established episode of delirium in palliative care: expert opinion and review of the current evidence base with recommendations for future development. J Pain Symptom Manage. 2014;48:231-248
- Hshieh TT, Yue J, Oh E, Puelle M, Dowal S, Travison T, Inouye SK. Effectiveness of multicomponent nonpharmacological delirium interventions: a meta-analysis. JAMA Intern Med. 2015;175:512-20
- Okuyama T, Yoshiuchi K, Ogawa A, et al.; Phase‐R Delirium Study Group. Current Pharmacotherapy Does Not Improve Severity of Hypoactive Delirium in Patients with Advanced Cancer: Pharmacological Audit Study of Safety and Efficacy in Real World (Phase-R). Oncologist. 2019 24:e574-e582
Anxiété en soins palliatifs
- S. Mercadante, C. Adile, P. Ferrera, A. Cortegiani, A. Casuccio. Symptom HyperExpression in Advanced Cancer Patients with Anxiety and Depression Admitted to an Acute Supportive/Palliative Care Unit. Support Care Cancer 2019, 27 3081-3088
- Pautex S, V. Toni, P.Bossert, H. Hilleret, D. et al. Anxiété dans le cadre de soins palliatifs. Revue Médicale Suisse. 2006;2 2484-7
- Depping AM, Komossa K, Kissling W, Leucht S. Second‐generation antipsychotics for anxiety disorders. Cochrane Database of Systematic Reviews 2010, 12: CD008120
- Groupe d’experts de palliative ch, L’anxiété (angoisse) en fin de vie, BIGORIO 2011
- Freeman Jodie, Klingele Anna, Wolf Ursula, Effectiveness of music therapy, aromatherapy, and massage therapy on people in palliative care with end-of-life needs: A systematic review. J Pain Symptom Manag.2024; S0885-3924
Plaies
- Déléaval, M., Bobbink, P., Pastor, D., Plaies chroniques des membres inférieurs: un guide pour le non-spécialiste, Rev Med Suisse,2024: 867: 622-630
- Tableau des pansements (HUG)
- Sezgin D, et al., Defining palliative wound care: A scoping review by European Association for Palliative Care wound care taskforce. J Tissue Viability. 2023; 32:627-634
Urgences
- Higdon ML, Atkinson CJ, Lawrence KV. Oncologic Emergencies: Recognition and Initial Management. Am Fam Physician. 2018 1; 97:741-748
- Walker MD, Shane E. Hypercalcemia: A Review. JAMA. 2022;16:1624-1636
- Mori M, Morita T, Bruera E, Hui D. Prognostication of the Last Days of Life. Cancer Res Treat. 2022; 54:631-643
- Hui D, dos Santos R, Chisholm G, et al. Clinical signs of impending death in cancer patients. Oncologist. 2014 Jun;19:681-7
- Kaneishi K, Morita T, Kohara H, Ito T, Nakagawa J, Nishi T, Inoue A, Oyamada S, Mori M. Epidemiology of Respiration with Mandibular Movement in Advanced Cancer Patients: A Multicenter Prospective Cohort Study. J Palliat Med. 2022;25:461-464
Situation de fin de vie
- Mori M, Morita T, Bruera E, Hui D. Prognostication of the Last Days of Life. Cancer Res Treat. 2022 Jul;54(3):631-643. doi: 10.4143/crt.2021.1573
- Hui D, dos Santos R, Chisholm G, Bansal S, Silva TB, Kilgore K, Crovador CS, Yu X, Swartz MD, Perez-Cruz PE, Leite Rde A, Nascimento MS, Reddy S, Seriaco F, Yennu S, Paiva CE, Dev R, Hall S, Fajardo J, Bruera E. Clinical signs of impending death in cancer patients. Oncologist. 2014 Jun;19(6):681-7. doi: 10.1634/theoncologist.2013-0457
- Kaneishi K, Morita T, Kohara H, Ito T, Nakagawa J, Nishi T, Inoue A, Oyamada S, Mori M. Epidemiology of Respiration with Mandibular Movement in Advanced Cancer Patients: A Multicenter Prospective Cohort Study. J Palliat Med. 2022 Mar;25(3):461-464. doi: 10.1089/jpm.2021.0328
Assistance suicide
- Code pénal suisse
- Législation genevoise, loi sur la santé
- Autorisation / interdiction de l’assistance au suicide au sein des HUG
- Conseil d’éthique clinique des HUG
Sedation
- Díez-Manglano J, Isasi de Isasmendi Pérez S, García Fenoll R, Sánchez LÁ, Formiga F, Giner Galvañ V, Dueñas C, Roca B, Estrada Díaz C, Casariego Vales E; UDMIVI study researchers. Palliative Sedation in Patients Hospitalized in Internal Medicine Departments. J Pain Symptom Manage. 2020; 59:302-309
- Rietjens JA, van Delden JJ, van der Heide A. Palliative sedation: The end of heated debate? Palliat Med. 2018; 32:1639-1640
- Ziegler S, Schmid M, Bopp M, Bosshard G, Puhan MA. Continuous Deep Sedation Until Death-a Swiss Death Certificate Study. J Gen Intern Med. 2018;33:1052-1059
- Ana Claudia M Gardia et al. Palliative Sedation at Home: A Scoping Review. Am J Hosp Palliat Care. 2023;40:173-182
- SM Surges et al; Revised European Association for palliative care (EAPC) recommended framework on palliative sedation: An international Delphy study Palliative Medicine. 2024;38:213-228
- Tijn Brinkkemper et al. Palliative sedation at home in the Netherlands: a nationwide survey among nurses. J Adv Nurs. 2011;67:1719-28
- Kelley Newcomer et al. Palliative Sedation in the Home Setting #451. J Palliat Med. 2023;26:299-300
Annonce de la mauvaise nouvelle
- Fallowfield L., Jenkins V., Communicating sad, bad, and difficult news in medicine. Lancet 2004:363;312-319
- Zulman D., Haverfield M., Shaw JG and al. Practices to Foster Physician Presence and Connection with Patients in the Clinical Encounter. JAMA 2020;32:70-81
PSA-Directives anticipées
- Task Force palliative ch advance care planning
- Rietjens JAC, Sudore RL, Connolly M, et al.; European Association for Palliative Care. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017 18(9): e543-e551
- Directives anticipées
Voies et modalités d’administration et prélèvements en soins palliatifs
- Capp info n°63
- Van Lemmen M, Florian J, Li Z, van Velzen Me t al. Opioid Overdose: Limitations in Naloxone Reversal of Respiratory Depression and Prevention of Cardiac Arrest. Anesthesiology. 2023;139:342-353
- Yugar B, McManus K, Ramdin C, Nelson LS, Parris MA. Systematic Review of Naloxone Dosing and Adverse Events in the Emergency Department. J Emerg Med. 2023.65: e188-e198
- Aziz R, Nguyen L, Ruhani W, Nguyen A, Zachariah B. The Optimal Initial Dose and Route of Naloxone Administration for Successful Opioid Reversal: A Systematic Literature Review. Cureus. 2024;16: e52671
Sites Internet